Activist of Thanks

When I was in the process of changing oncologists, I was haunted by my hairstylists.  I had relationships on my mind—paid relationships, fragile as any romance, with even murkier codes of conduct.  In the weeks that led me closer to Dr. Y as I contemplated how to say goodbye to Dr.X, the plaintive faces of my hairstylists kept knocking against each other in my river of daily thoughts.

I had blood on my hands.  I had treated them very poorly.  After months, even years of every-six-or-seven-weeks compulsory conversation, I just picked up and took my business elsewhere, chasing the next set of dexterous wrists that came along—or, as was sometimes the case, returning to a set I had already known.

Eva, my current hair stylist, is a case in point.  Last summer I dropped back into her life after an abrupt absence of eight or nine years, without a word of explanation.  It was my daughter who drew me back.  She had begun getting her hair cut by Eva on her trips home from New York City and the two of them were hitting it off, Eva’s name bandied about in our household on the  tails of every cute and shaggy cut.

It’s hard not to hit it off with Eva.  Genuine, free-spirited, a responsive and intuitive listener, a  graduate from the School of Hard Knocks, a haircut by Eva is more than a haircut; it’s soul-fortification.

Hearing tales of Eva, I was besotted with nostalgia.  I scheduled an appointment, which meant leaving Carmen, whose only faults were that she had been cutting my hair a tad too short and nervously treated every cut as though it were a buffet of choices that only I could decide.

Ah Carmen, into whose hands I had the good fortune to come running after all my “chemo curls” had disappeared during a devastating cut.  Carmen, who, in spite of her youth, had been so patient and kind, settling next to me on the vinyl couch,  listening to my cancer hair debacle without flinching, nodding her headful of warm, red, abundant curls as though I were telling her an old, old story.

Though a relative novice, she always did a bang-up job, really fussing over my hair.  I’d praise her profusely.  But when the cut was done and she stood at the register while I struggled with my math for a tip, she always looked a bit doubtful, a little sad, as though maybe I wouldn’t return.  Then one day I didn’t.

Carmen was my rescue from the bob that bombed.  Martha twisted and swept her brush gamely to fill the void where nature failed—or won—both of us hushed before the genetic theater playing out before us.  My first post-chemo cut with Martha had been a smash success, when I still held favor in the land of curls.  Now, in exile, I couldn’t go back, in spite of the intimate history Martha and I shared.  She had also cut my wig—right on my head as I wore it—in the private back room of her salon.

I chose not to wear my wig and said so in an article I wrote for our local paper.  But in the hail storm that was breast cancer, Martha was a honey-blond beacon of roughly my own age who groomed me tenderly at various stages of hair loss and growth.  When she sprinkled my nose with my own fine hair during an unscheduled bang trim, it felt like fairy dust.  I sometimes see her out and about.  Once I looked the other way.  Another time she collected my ticket at a local jazz event.  She smiled and said hello, tearing my heart right out of my chest.

Before Martha was Terri—just once—and before Terri was Kara, a single mom who took a job at JC Penney, but I just couldn’t follow her there.  Prior to Kara was Kim, who injured her shoulder in a car accident, speeding up her early retirement, which must have pleased her, since she’d been transitioning to horse doctoring anyway.  Cheerful, confident and collected—Kim was a super-pro I had been seeing for a very long time.

I was loyal to Kim.  I followed her from salon to salon as her disputes with management propelled her, ever-onward, in search of greater autonomy.  But Kim could not be contained.  Fiercely independent, always reaching, always searching, her boundless energy at last caused her to try a teaching gig, and she passed me along to Eva, whom I quickly adored.

And so I saw Eva for several years.  A parade of short, spiky cuts;  meandering, insight-laden, Eva-inspired conversation.  But I had been edging into perimenopause, and the leopard prints, brooding paintings, and deep reds and purples of the salon’s funky aesthetic—formerly so delightful—began, just a little, to oppress my spirits.  My world had shifted, ever so slightly, into melancholic tints and anxious undercurrents.  Meanwhile, Kim was glimmering on the horizon like a shot of serotonin.  She’d resurfaced at the brightly lit venue where we first met and was trying to scare up her old client base.  I returned to her, without a word of goodbye to Eva.

Now I’ve come full circle, having swallowed a bird to catch the spider to catch the fly that wiggled and wiggled and tickled inside me, a causal chain of whim, escape, hand-me-downism,  and sudden exits through invisible trapdoors.   Eva and I don’t speak of my vanishing, but I see her questioning eyes.

Kim, Eva, Kara, Martha, Carmen—I owe them a debt of thanks for their sweet, imperfect gifts. Marooned with me on their styling station islands, they opened up, revealed parts of themselves, saw me through crises cataclysmic and mundane.  I don’t agree that consumers owe nothing to those they pay for services; every relationship deserves a conclusion.  Having persuaded myself that no thanks comes too late, I’ve already dispatched a few cards of gushing gratitude.  I’m a little embarrassed, but I feel energized, mobilized, a bit like an activist—an activist of thanks.

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Changing Oncologists: The Cows Coming Home

I thought I was in the presence of an angel.  There she was, fit as a fiddle in her white blouse and dark pants, perched on her stool, answering all my questions with such a thoughtful, relaxed air that her hair became tinged with flecks of gold and I loved her.  She entertained my questions—didn’t just answer them, but entered their space with me, smiling and getting comfortable, appearing in no hurry to get out, though certainly she had other patients waiting in the wings with room-sized questions of their own.

All the small details leading to her entrance had made me nervous: a parking lot so full that I had to park in front of the dumpster, a windowless waiting room with garish wall art, nurses whose print smocks clashed with the wall art.  This is bad, I thought, as I sat in my chair, feeling assaulted, picturing the more attractive waiting room I was forsaking.  Why was I here, anyway, after a three-year run, trading windows and a respectable wall sculpture for this rundown place?

When at last Dr. Y walked into the examining room, it was clear.   She was the oncologist I’d been longing for.  I’d been ready with my love for quite a while, and now I’d set the stage for her to walk into my waiting arms.  Little did she know I had seen her participating in local cancer functions.  I’d even introduced myself once after a breast cancer panel, approaching her with my scruffy head to divulge the details of my Stage 3 diagnosis.  She sparkled with personal interest, friendly and knowledgeable as my daughter and I gathered ever closer, instant acolytes illuminating her greater glow.

Yet I stayed with Dr. X, the oncologist I’d chosen by lottery a year and a half earlier when I got my diagnosis.  I remember that moment distinctly.  “Would you like Dr. X, Dr. Y, Dr. Z or Dr. B?” the surgeon ticked off, running through her mental rolodex of doctors.  My husband and I sat stunned in front of her.  We’d had a few days to process the news but were still reeling. “Umm, Dr. X,” I said, choosing a woman’s name that stood out like sturdy bike handles.

And so I got on that bike.  Together we went places—scary places, to be sure, sixteen weeks of chemo, but places I had to go to.  She was firm, in charge, no-nonsense, and I, shaky and spinning, needed to be told what to do.  But there was trouble early on.  Once, exhausted by thorny questions surrounding whether I should have radiation after chemo, I placed the question before her during a routine check-in.  I wanted her professional opinion of what I should do, hoping she would assume oversight—at least temporarily—of my overall picture.   But radiation wasn’t her game. “There’s no clear answer,” she clipped. “We could talk about this ‘till the cows come home.”  Then she left to see the next patient.

I cried and raged for a few moments in the privacy of that box-like room as my beleaguered husband offered reassurances.  Then I pulled myself together and walked to the chemo room for another day’s infusion.

Maybe she was having an off day.  Or maybe I appeared more wrung-out than I thought, and she just couldn’t—for whatever reason—tolerate it.  To be fair, I often liked her.  She was upbeat and had a sense of humor, and particularly in the routine visits following treatment, chased down my every physical complaint like a hardnosed detective sniffing out clues.  There was even a kind of warmth to her.  But as I sat on the examining table and she told me firmly once again to uncross my legs, I felt, as I always did, like a child.  Brusque, arch, a tad sarcastic, she both scared me and scarred me a little.

Softer and warmer, Dr. Y. exceeded my expectations during that first appointment.  But when I returned for a follow-up, things were different.  I had my pick of many parking spaces.  The nurses’ smocks were easier on the eyes behind the sliding windows.  After my vitals were taken, Dr. Y. appeared almost on the dot.  Everything felt suspiciously easy and the lack of having earned her after an arduous climb dulled her sunny entrance.  I sat in my chair, slightly depressed, prompting her about the details of our last conversation and listening to reports about cancer drugs I had already heard from Dr. X.  The truth that I had suspected all along tugged on me unmistakably: I had turned her not simply into the oncologist I’d been longing for, but the Oncologist I’d been Longing for All My Life—the answer to all my life’s ills who would meet my every need with nurturing, transcendent, well-targeted knowingness.

Not only that, but switching doctors would disrupt the continuity of my cancer story.  Nobody would hold it all, know it all, but me.

As I sat hearing myself say that I wanted her as my new oncologist, doubts whimpered in my head:  Was I substituting a hard-working, less popular doctor for a rock star with less experience?  Would Dr. Y bring out her own cows eventually?

Already I miss Dr. X.  I never loved her—and if I had, she would have put an end to it.  What will I do without her to rebel against?  What will become of all my adolescent fury about forced menopause and emerging from cancer with a host of new delicacies, suddenly SO much older?  She helped me be angry.

Of course, she was always much more important to me than I ever was to her.  I’ve sent her a goodbye card expressing my genuine gratitude, leaving out the wound of the cows.  At last I’ve chosen my own doctor.  Though it feels like being shot from a canon, catapulting through air, it was time to stop struggling, time to give peace a chance.

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Goodbye Secrets, Goodbye Bra

I had no business shopping at Victoria’s Secret. After all, I eschew their catalogues, the sexed-up models, the soft-porn poses luring young women into seeing themselves as objects of male desire. The stores have always seemed strangely discordant—all those impeccably trained, fresh-faced sales clerks whose job it is to mother me, a middle-aged woman, into a new bra, fooling me into believing that the pink and red lights and shelves of slinky panties were the natural setting for such an undertaking.

Why, two years ago, I chose Victoria’s Secret for my new bra I can’t quite say. I dislike driving that stretch of interstate to the mall—too much merging just where the traffic thickens and the road bends right precipitously—so I must have had some other purpose. Likely I was there to ransack H & M or the sales racks at Macy’s, propelled to brave the highway—white-knuckled all the way—by my perpetual craving for something new.

What I do know is that I had my own secret. I had mixed feelings about sharing it with Victoria, who already had one, or Janelle or Hillary or whoever attended me that day. In the end, I didn’t have to. I was grateful for the discreet knocks and bras dangled through the crack of a door that are the ritual of a bra-fitting, exhausting me in no time with all the putting on and taking off and near-total dearth of anything without an underwire except for something that came only in polka dots.

Since I tried on so many bras, I lost all sense, and ended up choosing the marked-down cotton bra, a big mistake, since it was really made of cardboard, which I discovered only after I brought it home and wore it around some. But my secret was still intact: my small, rippled implant, that misshapen twin of  a breast that is just the simple fact of me and the breast cancer I had. I’m not ashamed of it, and I don’t exactly love it. It just didn’t seem right for Victoria’s Secret, nor Victoria’s Secret for it.

A cardboard bra is intolerable, so back I went to the mall, placing myself in the hands of another cool and unflappable attendant. This time I succumbed to the ubiquitous underwire tyrannizing women’s lingerie stores everywhere. Many in my life, including my own lovely and ample-breasted daughter, have nudged me to take the underwire plunge. “Try it, you’ll like it!” they said.  “Don’t worry about the wire! You won’t feel a thing!”  I was doubtful. “Doesn’t it dig into your skin sometimes, like when you’re sitting on the bed reading?” They’d looked at me strangely.

Maybe their breasts were already numb. Because the black, underwire “Gorgeous” or “Incredible,” or whatever I got that day—the bra I consign to the shabby, dark pockets of my closet floor—does just that. It digs. Not all the time, but just enough to make the tender skin surrounding my implant all the more tender.

Yes, there are special stores for women like me. Open the door, a bell tinkles, and a clerk calls out to you kindly, asking if she can help. Calling you honey, she settles you into a dressing room, then chooses a dozen alternatives for a special-needs breast, grabbing pads that round out a cup like a perfect hill, making no one the wiser for looking at you.

That’s how I think it goes, anyway. I’ve never stepped into our local, much-touted lingerie store that makes mastectomies a special niche in addition to catering to naturally breasted women.  I can’t get past the Frederick’s of Hollywood side-show in the window—all corsets, garters, and, just possibly, whips—rivaling the self-esteaminess of Victoria’s Secret.

Even if I hustled past those frights into the safer, maternal lap of the store, I’m not sure I’d want all that attention–it’s too intimate.  On top of that, I detest padding: built-in or slipped into pockets, I don’t need to enter the world cushion-first.

Both my regular oncologist and radiation oncologist take turns asking me a strange question, forgetting they’ve already asked it.

As I lie on the examining table with my sweaters and camisole bunched around my neck—no secrets here, nor ceremony, just flesh—one of them will ask cheerily, in between probes, “Are you happy with your implant?” I always feel incredulous. Happy? Did it come in a perfumed gift bag? What part of breast cancer was about my happiness?

They want me to be pleased with my purchase because that would do their hearts good. I’m not pleased, but I’m not displeased, either. My surgeon did the best job she could stuffing a small pillow into an even smaller pillowcase.  It was a very tight job, so much skin had been pared away in small surgeries. I know she wanted to do better.

I was wrong when I said I didn’t quite love my breast. I love it in precisely the way one loves a deformity, in precisely the way one loves her own skin. What is a mastectomy, after all, but the hollowing of a fruit—the pulp removed, the skin left intact? How can I not claim my skin, my kin, my blameless, funny face?

Mostly I go braless now, which is one of the perks of aging: my breasts have become smaller, more aerodynamic. I’m enjoying a boyhood I never had. At night I shuck off my shirts as though I were an ear of corn. It’s been liberating thumbing my nose at the brassiere industry, that circus of pre-packaged notions, though sometimes a hand of cold air slips up my shirt, making me shiver. I hate that. But it’s not the worst thing in the world.

 

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